Adults with X-linked agammaglobulinemia: impact of disease on daily lives, quality of life, educational and socioeconomic status, knowledge of inheritance, and …

JA Winkelstein, ME Conley, C James, V Howard… - Medicine, 2008 - journals.lww.com
Since many children with X-linked agammaglobulinemia (XLA) can now be expected to
reach adulthood, knowledge of the status of adults with XLA would be of importance to the
patients, their families, and the physicians caring for these patients. We performed the
current study in adults with XLA to examine the impact of XLA on their daily lives and quality
of life, their educational and socioeconomic status, their knowledge of the inheritance of their
disorder, and their reproductive attitudes. Physicians who had entered adult patients with …